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KMID : 0607320230320010067
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Journal of Korean Academy of Psychiatric and Mental Health Nursing
2023 Volume.32 No. 1 p.67 ~ p.77
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Illness Experiences of People with Young-onset Dementia
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Ahn Su-Youn
Yi Yeo-Jin
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Abstract
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Purpose: The purpose of this qualitative study was to describe the illness experiences of people with young-onsetdementia who live in a community.
Methods: Six community-dwelling patients with young-onset dementia, aged 65or under, were recruited. Data were collected from August 2019 to July 2020 and analyzed using qualitative thematicanalysis.
Results: The data were classified into five themes and eleven sub-themes. The following themes emerged:1) Anguish enough to want to die from dementia symptoms that hit the prime of one's life; 2) Being thrown from middleage to old age; 3) Becoming a burden due to changing roles within the family; 4) Experiencing difficulties in thediagnosis and treatment process due to onset before old age; and 5) Living with young-onset dementia in one's ownlife.
Conclusion: The findings suggest that people with young-onset dementia have unique experiences associatedwith middle age Korean traits. Therefore, based on their illness experiences, effective psychosocial nursinginterventions tailored to their age should be developed.
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KEYWORD
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Dementia, Middle age, Qualitative research
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